Ehlers-Danlos Syndrome (EDS), specifically the hypermobile type (hEDS), is a multifaceted condition that impacts not just the joints but the entire body, causing widespread pain and a wide range of systemic symptoms. At our clinic in Airdrie, we specialize in athletic therapy, massage, and traditional Chinese medicine (TCMD). We recognize the complexities of EDS and related hypermobility spectrum disorders (HSD), adopting a multidisciplinary approach to manage the condition holistically and improve the quality of life for our clients.
Understanding Ehlers-Danlos Syndrome
Key Types of EDS
- Hypermobile EDS (hEDS): Characterized by severe joint hypermobility, frequent dislocations, and chronic pain.
- Classical EDS (cEDS): Known for highly elastic, fragile skin and a tendency for scars.
- Vascular EDS (vEDS): Considered the most severe form, affecting blood vessels and organs with potential for life-threatening complications.
- Kyphoscoliotic EDS (kEDS): Leads to severe muscular weakness, scoliosis, and fragile tissues.
Common Symptoms of EDS
Ehlers-Danlos Syndrome can manifest in a variety of ways, depending on the type and severity of the condition. Common symptoms may include:
- Joint Hypermobility: Joints that move beyond the normal range with ease, leading to frequent dislocations and subluxations (partial dislocations).
- Chronic Pain: Persistent pain in the joints and muscles, often exacerbated by physical activity.
- Skin Elasticity: Skin that is unusually stretchy, soft, and fragile, leading to easy bruising and slow wound healing.
- Easy Bruising: Increased tendency to bruise due to fragile blood vessels and connective tissues.
- Muscle Weakness: Reduced muscle tone and strength, which can contribute to joint instability and increased risk of injury.
- Gastrointestinal Issues: Problems such as acid reflux, irritable bowel syndrome (IBS), and other digestive disturbances.
- Cardiovascular Concerns: Issues like heart valve problems, arterial fragility, and varicose veins.
- Autonomic Dysfunction: Symptoms like dizziness, fainting, and difficulty regulating body temperature due to dysregulation of the autonomic nervous system.
The Importance of Collaborative Healthcare
Managing EDS, especially hEDS, requires a collaborative healthcare approach due to its complexity and the range of systems it affects. Clients benefit significantly from working closely with a team of healthcare providers, including geneticists, cardiologists, gastroenterologists, physical therapists, and pain management specialists. This team approach ensures all aspects of the disorder are addressed, from genetic testing and diagnosis to physical therapy and pain management.
Getting Tested for EDS
For anyone struggling with EDS or suspecting they might have a hypermobility disorder, getting the right diagnosis is crucial. Here’s how to go about it:
Consult Your Primary Care Physician: Start by discussing your symptoms with your primary care doctor. They can refer you to a specialist, such as a geneticist or rheumatologist, for further evaluation.
Genetic Testing: Although not all types of EDS can be confirmed through genetic tests, certain types, like vascular EDS, have specific genetic markers. Your specialist may recommend genetic testing to help diagnose your condition.
Clinical Evaluation: Diagnosis of hEDS primarily relies on a thorough clinical evaluation. This includes a detailed medical history, physical examination to assess joint hypermobility, and ruling out other conditions that mimic EDS symptoms.
Specialist Referrals: Based on your symptoms, you may be referred to various specialists (e.g., cardiologists, gastroenterologists) to evaluate and manage the systemic effects of EDS.
Multidisciplinary Approach: At our clinic, we work alongside your healthcare team to provide a comprehensive management plan that includes physical therapy, pain management, and holistic treatments.
Our Multidisciplinary Approach to Chronic Pain Treatment in Airdrie
- Athletic Therapy: Focuses on preventing and managing musculoskeletal injuries through exercises and rehabilitation programs that improve stability and reduce the risk of dislocations.
- Massage Therapy: Helps in managing chronic pain, reducing muscle tension, and improving circulation, which is crucial for clients with fragile blood vessels.
- Traditional Chinese Medicine (TCMD): Offers alternative approaches such as acupuncture and herbal treatments to alleviate symptoms and improve overall well-being.
Client Education and Support
